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Topic

PCORnet Research Innovations: Engagement, Dissemination, and (Hopefully) Tech Transfer Pilots 

Presenter

Thomas Carton, PhD, MS, Louisiana Public Health Institute, and Principal Investigator of PCORnet’s REACHnet Clinical Data Research Network

Keywords

Pragmatic clinical trial; Clinical research; Patient engagement; PCORI; PCORnet; NCATS; REACHnet; Clinical Data Research Network

Key Points

  • PCORnet is a national “network of networks” designed for people-centered research. It consists of 20 Patient-Powered Research Networks (PCRNs), 13 Clinical Data Research Networks, and a Coordinating Center.
  • PCORnet’s Research Innovation Workgroup was created to pilot test network-driven innovations and boost the efficiency of pragmatic clinical trials. PCORnet is collaborating with the National Center for Advancing Translational Sciences (NCATS) Recruitment Innovation Center to foster shared learning and a joint dissemination approach.
  • The workgroup distributed an engagement survey to see which innovative tools held the most interest across PCORnet. The highest ratings were for tools that allowed study results to be returned to patients and those that allowed e-consent of patients to registries or clinical trials.
  • Dissemination and sharing of results will involve a series of PCORnet Best Practices webinars (coordinated with NCATS) to highlight tool sets and promote tech transfer between networks.

Discussion Themes

What are the best methods for promoting the use of PCORnet’s Commons and engagement overall? Are there incentives for networks to share these innovative tools and materials?
The PCORnet Commons is a site for uploading and sharing tools. Technological adoption of the site is an ongoing process.

For More Information

To learn more about PCORnet’s approach to engagement in research, visit http://www.pcornet.org/about-pcornet/engagement-in-research/.

Read more about PCORnet's Commons collaborative space.

Tags

@Collaboratory1, @PCORI, @PCORnet, @NCATS_NIH_gov
#ClinicalTrials, #ClinicalResearch #pctGR, #PCORnetwork
 

 Grand Rounds 8-4-17

 
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